I had the ADA assignment of Epilepsy which is a seizure
disorder. Every 15 minutes for three hours I would essentially have a seizure.
This consisted of stopping anything I was doing for 2 minutes and sit still.
As I did this assignment it first was a huge inconvenience.
I had to pause homework. I would pause videos or readings and set a timer for
two minutes. During this time I reflected on how hard it would be if I were
really having a seizure. I wouldn’t be able to simply un pause a video, but I
would need some recuperation time because I’m sure seizures take up so much
energy. I had to stop eating during a meal and wait to leave the house. I sat
and waited for the seizure to end then I was able to go to the gas station. On
the way home my husband drove as I had another seizure.
Driving, going to school, and living an everyday lifestyle
would be so hard with and epileptic disorder this demanding and time consuming.
Not only was it inconvenient, but I didn’t really have any seizures. Someone with
this disorder would have very litter energy to complete tasks and very little
time to complete activities of daily living between the seizures.
As I was on my way to the gas station I realized that
seizures probably aren’t aware of time. What if I really did have a seizure and
it decided it wouldn’t wait the full 15 minutes. I wouldn’t be able to drive.
ADA doesn’t have a place comfortable or safe for me to go in every building to
have a seizure. There aren’t any accommodations or modifications to buildings
that would allow safety for myself if a seizure were to happen at any moment.
Thinking back on my experience it is nothing compared to
someone who deals with these episodes multiple times every day. They can’t set
a timer and hope their seizure adheres to their schedule. They can’t pause
videos, stop eating, the seizure doesn’t have time to wait for them to pause. Those
two minutes every 15 minutes did give me time to think. I thought about how
scary it would be to not control my own body. I can’t imagine how frightening
it would be to be a family member watching their child experience one for the first
time.
As ADA considers accommodations and modifications, there are
always going to be disabilities that are left out or hard to accommodate for.
It is impossible to put into place those accommodations for every disability.
What we can do as educators, is help our leaders become aware of those with disabilities.
They can be made aware that these people are strong, and can be as independent
as possible if we allow them the guidance to do so.